A popular M.E. patient activist reposted an epic troll comment, in which she was vilified, on her Facebook page last night. (Purposely not linked) Trolls are everywhere and the comment, though particularly eloquently vicious, was not that surprising. The fact it was made in the first place is what strikes me and leads me to these thoughts:
We are not the first patient community to face public ridicule but, in this age of no bully, no hate movements everywhere, why is it still continuing? Why it is okay to ridicule an incurable, life-devastating disease and the people who suffer from it? How is that not hate and why aren’t the decent people in the world stepping up to stop it?
I get why it is happening–the public has never been given an honest look at the true nature of the disease, M.E. Plus, we are all sick, mostly at home, in bed, invisible to society and seemingly insignificant in a busy world. Out of sight, out of mind. I am just having a hard time grasping why my getting sick with an unusual disease with a funny name opens me, and my fellow sufferers, up to ridicule in public and the media? Is it really that inconceivable a disease exists which causes the body’s energy generating system to malfunction? Every other system in the body can malfunction, why not energy? And, how is that funny?
Disparage any other disease or patient and people will call out the bullies loud enough the media provides coverage for the next three news cycles. Never with M.E., ever. This being the case, perhaps we should be thankful our issues are publicly ignored and things like the IOM report media blitz happen rarely.
The hateful behavior of the public towards M.E. needs to stop. People battling M.E. face so much obstruction in their lives; they need an outpouring of support, not a load of hate. Trolls should be called out and shamed. People with their snarky remarks should stop and realize they are a big part of the overall perception problem. It is a disgrace this is even an issue.
Last night’s troll comment crossed my line in the sand. I cannot watch this happen any longer. I am going to do something about this. I don’t know what yet, and I don’t know where I’m going to draw the energy from to do it, but I’m too angry not to do something. I am open to ideas and anyone who wants to join me is welcome. “No Hate” needs to apply to the M.E. patient community too.